Wednesday, March 15, 2023

The UnSayable and the UnSpeakable


"One of the things a writer is for is to say the unsayable, speak the unspeakable, and ask difficult questions."                

-Salman Rushdie. (1995). Independent on Sunday.


The quote by Salman Rushdie represented what I would like to do. Rushdie is Indian-born and British-American novelist. In 1989, he got a fatwa for his fifth book, The Satanic Verses. He got death threats for that book. I would like to focus on his quotable above.

Now, I’ll like to ask a difficult question and even maybe say “the unsayable and the unspeakable” within our deaf communities. Unsayable is defined as expressing an opinion determined to be too controversial to mention. The definition for unspeakable is “indescribably bad or evil.” Some similar words for unspeakable are:

appalling; horrible; inhuman; monstrous; shocking; unbelievable; unimaginable.

Within our deaf communities, we’ve been prevented from “saying the unsayable and speaking the unspeakable.” Even those stuff that does harm to deaf babies and their families.

It is difficult to understand why we do not encourage families and their deaf babies to begin learning signed languages as part of intervention strategies. I remember, some years ago, a very unsayable incident where some deaf leaders gave a presentation suggesting that not teaching deaf babies sign language should be considered “child abuse.” I also remember the outcry that we were shut up…by both the deaf and hearing people. That can be considered the “unsayable and unspeakable.”

This very one recommendation that families should learn signed languages with their deaf babies can save deaf children and their families from lifetime struggles from language deprivation syndrome and dinner table syndromes. 

I am wondering…

Why has EHDI policy been reauthorized in December 2022 despite its harmful effects on deaf babies and their families? (Hatrak, 2022)


Thursday, November 3, 2022

Reviving my Think Tank blog

My last blog entry was February, 2018. Then I was into my first year as a doctoral student. Fast forward to February 2022, I received my doctorate in Educational Policy, Leadership, and Management. I hope to revive this Think Tank blog for my musings and for any other guest bloggers.

The postings are utterly random, and occasionally, there might be series of postings.

I know I need to include video ASL translations with my blogs. When I figure out how, I will do that.


Saturday, February 17, 2018

Deaf OR Deaf and Hard of Hearing (DHH)


Deaf is defined as “partially or wholly lacking or deprived of the sense of hearing” (Dictionary.com, n.d.). Thus, Deaf is a good representative word for all people who have varying levels of hearing without resorting to others’ perspectives that hard of hearing is a better group. It perpetuates a hierarchical sense that it is better to be hard of hearing than to be Deaf.

We should reject the phrase of “deaf and hard of hearing” and use only “Deaf.” In discussing the difference between deaf and hard of hearing, Berke (2017) said it depends on whom you ask. Hard of hearing is a medical term given to people who have a mild hearing loss. In our using “Deaf and Hard of Hearing (DHH)” we are using a term that is being perpetuated by a medical point of view whereas, historically, Deaf had always been used to represent a spectrum of people with varying hearing status.

It is not a radical notion if we will look at other groups with labels. We call Black people “Black” without resorting to levels of their blackness. We say “autism spectrum disorder” without labeling where on the spectrum they are. Deaf and Hard of Hearing allows us to place one above others by levels of their hearing status. We are implying that it is better to be hard of hearing than to be deaf.


References

Dictionary.com. (n.d.). Deaf. Retrieved from http://www.dictionary.com/browse/deaf

Berke, J. (2017). What is the difference between deaf and hard of hearing? Verywell.com. Retrieved from https://www.verywell.com/deaf-or-hard-of-hearing-whats-the-difference-1048593

Wednesday, November 8, 2017

If it is not intentional ignorance, what is It?

“Sometimes we find ourselves walking through life blindfolded, and we try to deny that we're the ones who securely tied the knot.” 

We are aware that our state- and federally-funded programs frequently do not meet the needs of Deaf babies & toddlers and their families, let alone Deaf adults. There have had been both national and state advocacy efforts with both state and federal government agencies to communicate our concerns and needs. In more recent years, there has been a more concentrated effort to discuss the greater concern of language deprivation syndrome among Deaf children and students. California Association of the Deaf (2016) wrote a language policy report illuminating the problems and issues of dismal K-12 students’ language and math skills.

Hatrak (2016) wrote:

Language acquisition – or the lack of an acquired language – ultimately affects the child’s life outcomes, not just in their cognitive and social-emotional developments but also in their literacy skills, academic achievements, mental health, and employment opportunities. Research studies now tell us that early childhood is the most important and pivotal period for language learning and acquisition for all children. The consequences of delayed or deprived language development are far more devastating for Deaf children. (para. 1)

How is it that our federal government agency, Maternal and Child Health Bureau, is not monitoring the services provided through one of their grantees? The same can be said about state-level agencies.

Although the Early Hearing Detection & Intervention (EHDI) Act of 2010 does provide a continuum of “language and communication options,” the National Center for Hearing Assessment and Management (NCHAM) is a $46 million federally-funded program that “ensures that all infants and toddlers with hearing loss are identified as early as possible and provided with timely and appropriate audiological, educational, and medical interventions” (National Center on Hearing Assessment and Management, n.d.).

In NCHAM’s two e-books, there is scant mention of language acquisition or development in their provision of interventional services to families with Deaf babies and toddlers ages 0-5. Their first ebook is A Resource Guide for Early Hearing Detection and Intervention, and the other is Preparing to Teach, Committing to Learn: An Introduction to Educating Children Who are Deaf/Hard of Hearing.

To illuminate how one of our federally-funded programs designed to assist Deaf babies and toddlers receive audiological, educational, and medical interventions, NCHAM’s A Resource Guide for Early Hearing Detection and Intervention has:

            -28 chapters with 43 authors, with only 4 of the 43 authors identified as Deaf.

Through a word search of the frequency of the following words: hearing, speech, language, and ASL, here’s the sum of each word in NCHAM’s A Resource Guide for Early Hearing Detection and Intervention:

hearing             speech              language          ASL
2601                315                  719                  70

These numbers represent the sum of times those words appeared in the NCHAM Resource Guide e-book. 74% of the times ASL came up appeared in only two chapters. One time it appeared as a communication methodology which is an incorrect description of American Sign Language.

NCHAM’s newer book is Preparing to Teach, Committing to Learn: An Introduction to Educating Children Who are Deaf/Hard of Hearing. The editor, Susan Lenihan, wrote in the preface of the e-book, “Research on practices for developing communication skills, literacy, and academic achievement has provided evidence-based strategies for teaching students and coaching caregivers” (p. i).

What does she not know about the importance of early language acquisition for the efficacy of literacy and academic achievement? As an educator, she and the authors ought to know that only through healthy language acquisition and development will Deaf students achieve literacy. How many times did the words hearing and language appear in the 16 chapters written by 22 authors, five of who are Deaf?

hearing             speech              language          literacy             ASL
1170                257                  997                  136                  58

Who are the professional experts that monitor interventional programs that are supposed to ensure that Deaf children acquire a language and ultimately literacy? Do they have ASL-Deaf expertise? Why would they not work with ASL-Deaf professionals? Is anyone minding the store? Or is it intentional ignorance? 

Please write to your Congressional delegation and share with them this blog and California Association of the Deaf’s language policy report (http://www.cad1906.org/2017/10/04/cad-language-policy-for-deaf-children-ages-0-5/).

References

California Association of the Deaf. (2017). The road to kindergarten: Language policy for Deaf children ages 0-5. Retrieved from http://www.cad1906.org/wp-content/uploads/2017/10/CAD-Language-Policy-for-Deaf-Children-Ages-0-5.pdf
Hatrak, M. (2016). How we are depriving our Deaf children OR how they can achieve academically. Think Tank about the lives of bilingual deaf people. Retrieved from http://hatrakthinktank.blogspot.com/
Lenihan, S. (2017). Preface. National Center on Hearing Assessment and Management (NCHAM). Retrieved from http://www.infanthearing.org/ebook-educating-children-dhh/chapters/1a%20CvrPgPreliminary%20Pages%202017.pdf
National Center on Hearing Assessment and Management (NCHAM). (n.d.) Retrieved from http://www.infanthearing.org/
National Center on Hearing Assessment and Management (NCHAM). (2016). A Resource Guide for Early Hearing Detection and Intervention. Retrieved from http://infanthearing.org/ehdi-ebook/
National Center on Hearing Assessment and Management (NCHAM). (2017). Preparing to Teach, Committing to Learn: An Introduction to Educating Children Who are Deaf/Hard of Hearing. Retrieved from http://www.infanthearing.org/ebook-educating-children-dhh/index.html


Saturday, May 28, 2016

How We Are Depriving our Deaf Children OR How They Can Achieve Academically

Bill Gates said, "The first five years have so much to do with how the next 80 turn out.” Language acquisition – or the lack of an acquired language – ultimately affects the child’s life outcomes, not just in their cognitive and social-emotional developments but also in their literacy skills, academic achievements, mental health, and employment opportunities. Research studies now tell us that early childhood is the most important and pivotal period for language learning and acquisition for all children. The consequences of delayed or deprived language development are far more devastating for Deaf children.

Nyle DiMarco – the current ASL-Deaf winner of Dancing with the Stars caused not one but two firestorms. The first was when he showed the world how Deaf people can dance without music, and the second when he -- as a celebrity spokesperson for Language Equity and Acquisition for Deaf Kids (LEAD-K) – announced that we need to end Language Deprivation Syndrome for Deaf children. His bold proclamation caused an internal firestorm within two polarizing camps of oral proponents and ASL-Deaf advocates. ASL advocates are fighting myriad battles, but for this op-ed article, the focus will be on dealing with the ideological belief that Deaf children and their families should not learn American Sign Language (ASL) along with English and with the consequences of their beliefs on the education of Deaf students.

Deaf children frequently arrive at Kindergarten with inadequate language skills and subsequently struggle with grade-level reading and math (O’Connell, 2007). That is definitely not a result of their hearing status but mainly because they have mostly deficient language development due to parents not using sign language at home. Furthermore, statistics for Deaf students, generally speaking, are not readily available because their scores are lumped with all other Special Education students’ scores. However, in California due to a legislative mandate in 2007, we were able to cull all of 12,000+ Deaf students’ scores. Only 8% of Deaf and 15% of Hard of Hearing K-12 students were reading at grade-level, and only 10% Deaf and 18% of Hard of Hearing students were performing grade-level math. Today, we have no idea how well our DHH students are doing. If hearing and speech skills were important, explain the dismal scores of our hard of hearing students. From a governmental accountability point of view, that should not be acceptable especially since the solutions to ending Language Deprivation Syndrome are readily available and fiscally efficient.

Currently, the interventional services provided to families with Deaf children do not include language services. National Center for Hearing Assessment and Management (NCHAM) is a $46 million federally-funded program that “ensures that all infants and toddlers with hearing loss are identified as early as possible and provided with timely and appropriate audiological, educational, and medical interventions.” Instead of a current focus on hearing and speech development only, Deaf children ages 0-5 need to also acquire language visually, naturally, and easily, for which using sign language would provide. They also need to access their languages, both American Sign Language (ASL) and English as early as possible.

How can we expect our Deaf student to achieve educationally with deprived, delayed, or deficient language development and skills? The deaf child must know a language before they can facilitate learning to read (Goldin-Meadow and Mayberry, 2002).

Dr. Sanjay Gulati, a professor at Harvard Medical School and a psychiatrist for Deaf children and adolescents, said, “Language deprivation and consequently brain damage is the single greatest risk to deaf babies and children” (Glickman & Gulati, 2003). When deaf people are language deprived – or delayed, their cognitive, social, and emotional skills are impacted. Their opportunities for higher education, employment, and pursuit of happiness are likewise affected. With the traditional and misguided intervention focus only on hearing and speech skills development, our Deaf children, who are mostly visually oriented, do not get healthy and full access to language.

Meier (1991) showed how a focus on Deaf children’s speech development again and again -- to this very day -- robs Deaf children of a language, either American Sign Language (ASL) or English.

Acquiring speech is for them a long, frustrating, and difficult endeavor, but many of them have had no alternative but to try…the education of the deaf emphasized speech training to the exclusion of sign language. Hearing parents were discouraged from signing to their children and were told that the use of a sign language would impede their child’s progress in learning English. Consequently, the deaf children of hearing parents, who were deprived of exposure to spoken language by biology, were deprived of exposure to sign language by society (p. 62).

Mayberry (2002) discussed the impacts of sign language acquisition on Deaf children’s cognitive development and reading in Deaf children. She wrote:

The language difficulties endemic to the population of children who are born deaf are completely preventable and caused by a lack of exposure to accessible linguistic input at the right time in human development, namely infancy and early childhood. The language difficulties caused by postponing exposure to accessible language until late childhood and adolescence are permanent and not ameliorated by substituting sign language for spoken language at an older age. Deaf children’s significantly delayed language development, in sign or speech, leads to poor reading achievement... (p.101).

            Other researchers studied the benefits of an early sign language acquisition by Deaf children for their cognitive development, theory of mind, and literacy. Goldin-Meadow & Mayberry (2001) wrote, “Deaf children who are proficient in ASL are often better English readers than deaf children who are not, despite the fact that ASL is structured very differently from English” (p. 227).

With the advent of hearing technology, there is some research that show how hearing technology does not deliver as much benefits as originally believed. Nittrouer et al (2012) concluded that those children with hearing technology would still need full language support and stimulation to help them with their literacy development. Cochlear implantation is not a panacea for language acquisition or for academic achievements.

Humphries et al (2012) outlined how linguistic deprivation of Deaf children causes harm to society in which Deaf adults exhibit evidence of illiteracy, unemployment, and poverty. Humphries et al (2012) also discussed the medical and hearing professionals’ misinformation about the supposed disadvantages of a sign language.  In many cases, these professionals’ coercing behavior and abnegation of trust to parents of Deaf children have done lasting harm to the Deaf children. There are other research studies that show repercussions from misinformation in the areas of adolescent mental health, academic outcomes, employment, and quality of life for Deaf people.

Our history of polarizing ideologies between signed and spoken languages initially started in 1880 when the second International Congress on the Education of the Deaf declared that oral language was superior to signed language when educating deaf students (Gallaudet, 1880). Out of 164 delegates, only one was Deaf. Today, 136 years later, we still have to fight an entrenched system to allow all Deaf babies and toddlers acquire a signed language. Hence, the LEAD-K and its celebrity spokesperson, Nyle DiMarco see a need to advocate that all Deaf children and toddlers become Kindergarten-ready through language acquisition or bilingually through both American Sign Language and English.

Only through appropriate interventional language services will our Deaf children be able to attain the academic milestones that they are capable of achieving.

References
Gallaudet, E. M. (1880). The Milan Convention. Retrieved from http://saveourdeafschools.org/edward_miner_gallaudet_the_milan_convention.pdf
Glickman, N. S. and Gulati, Sanjay. (2003). Mental health care of deaf people. New York, NY: Routledge.
Goldin-Meadow, S. & Mayberry, R. I. (2001). How do profoundly deaf children learn to read? Learning Disabilities Research and Practice (Special issues: Emergent and early literacy: Current status and research directions), 16, 221-228.
Humphries, T., Kushalnagar, P., Mathur, G., Napoli, D. J., Padden, C., Rathmann, C., & Smith, S. R. (2012). Language acquisition for deaf children: Reducing the harms of zero tolerance to the use of alternative approaches. Harm Reduction Journal, 9, 16. doi:10.1186/1477-7517-9-16
Mayberry, R. I. (2002). Cognitive development of deaf children: The interface of language and perception in neuropsychology. In S. J. Segaolwitz & I. Rapin (Eds.) Handbook of Neuropsychology, 2nd Edition, Volume 8, Part II, 71-107. 2nd Edition. Amsterdam: Elsvier.
Meier, R. P. (1991). Language acquisition by deaf children. American Scientist79(1), 60–70. Retrieved from http://www.jstor.org/stable/29774278
National Center on Hearing Assessment and Management (NCHAM). (n.d.) Retrieved from http://www.infanthearing.org/
Nittrouer, S., Caldwell, A., Lowenstein, J. H., Tarr, E., & Holloman, C. (2012). Emergent literacy in kindergartners with cochlear implants. Ear and Hearing, 33(6), 683–697. http://doi.org/10.1097/AUD.0b013e318258c98e

O’Connell, J. (2009). A message from the state superintendent of public instruction: California Infant/Toddler Learning & Development Foundations. California Department of Education. Retrieved from http://www.cde.ca.gov/sp/cd/re/documents/itfoundations2009.pdf